Revisting Self-Infusion

So, the last week has been a very interesting one with many up's and downs. As you probably so from my last post I had some difficulties infusing myself. I'm not sure exactly what happened but I lost most of my confidence in infusing myself. Instead of struggling, the next time I infused I decided to visit with the nurses at the Hemophilia Treatment Center. Going back to basics was exactly what I needed! It's not that I forgot how to infuse, but breaking everything down again really helps relieve the pressure. I was getting so anxious about missing my vein or blowing the vein that all that I could do. With the help of the great nurses at the Hemophilia Center here in Denver I was able to relax, focus, and succeed. Training for Kilimanjaro is back on track and I am really looking forward to this adventure without the fear of not being able to infuse on the mountain! Wish me luck and I will keep you posted about the journey ahead!

Difficult Day One

So day one of training didn't go so hot. I decided to infuse before I worked out yesterday and lets just say I didn't go so smooth. I tried to use my trusty hand vein and it instantly blew. I was discouraged and decided to let my girlfriend give it all try. No luck. I decided to try again....and again...and again. After blowing four hand veins and my girlfriend trying three times I decided on some professional help. My mom is a fabulous nurse and I went to her house where she nailed it on the first try! After eight pokes I was finally able to workout! Lets hope this goes smoother in the future.

Has anyone had similar experiences? This may have been one of the most frustrating and difficult experiences infusing that I have ever had. I would love to hear some helpful hints so this won't happen again!

Training for Kilimanjaro

Well today is the day I begin my training for Kilimanjaro! I've never trained for something like this before so I'm not 100% sure what to do or what to expect but I've decided that P90x should be a good start! With the physical training also comes a unique kind of training, INFUSION TRAINING! Since I don't generally prophylactically treat my hemophilia I have become kind of rusty when it comes to self infusion so with my new workout routine I will also begin infusing 3 times a week! Anyone have any good ideas about becoming a pro at infusing? I really want to get to the point that I don't even have to think about it anymore and can nail it everytime so any advice would be great! Below is a link to get more info on Kili and I will be posting more information about my climb soon!

http://en.wikipedia.org/wiki/Mount_Kilimanjaro

Hello!

Hi everyone! I've started this blog to share my stories about living with hemophilia and my continuing experiences with this disorder. I was diagnosed with severe hemophilia B at birth and although I have had some difficulties with this disorder I have been privileged and lucky to live a fairly normal life. I'm going to try and post stories about growing up with hemophilia as well as new stories of what I'm currently doing. I would also love to hear your stories as well! I'm hoping this blog can be used as a tool for those of you growing up and living with this disorder, as well as family and friends! I look forward to hearing from everyone!