Well today is the day I begin my training for Kilimanjaro! I've never trained for something like this before so I'm not 100% sure what to do or what to expect but I've decided that P90x should be a good start! With the physical training also comes a unique kind of training, INFUSION TRAINING! Since I don't generally prophylactically treat my hemophilia I have become kind of rusty when it comes to self infusion so with my new workout routine I will also begin infusing 3 times a week! Anyone have any good ideas about becoming a pro at infusing? I really want to get to the point that I don't even have to think about it anymore and can nail it everytime so any advice would be great! Below is a link to get more info on Kili and I will be posting more information about my climb soon!
http://en.wikipedia.org/wiki/Mount_Kilimanjaro
Hemophilia has had a huge effect on my life and despite everything this disorder limits me in, there are more then enough ways to lead a normal exciting life. This blog is designed to show those living with this disorder, whether it directly effects you or a family member or friend, how to live an exciting and normal life despite some limitations. Enjoy and feel free to share your stories as well!
Monday, March 7, 2011
Wednesday, March 2, 2011
Hello!
Hi everyone! I've started this blog to share my stories about living with hemophilia and my continuing experiences with this disorder. I was diagnosed with severe hemophilia B at birth and although I have had some difficulties with this disorder I have been privileged and lucky to live a fairly normal life. I'm going to try and post stories about growing up with hemophilia as well as new stories of what I'm currently doing. I would also love to hear your stories as well! I'm hoping this blog can be used as a tool for those of you growing up and living with this disorder, as well as family and friends! I look forward to hearing from everyone!
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